ALS One, Inc., a Massachusetts non-profit corporation (hereinafter “ALS One”) is committed to protecting your privacy. Please read the following Privacy Policy (the “Privacy Policy”) for details concerning our policies related to the Web sites and applications that you may use in connection with interacting with us and reviewing our Web site. Throughout this Privacy Policy, the words “we,” “us,” and “our” refer to ALS One and its directors, employees and affiliates. By accessing or using our Web site at: (the “Site”) or any of our mobile applications (collectively with the Site, the “Platform”) on any computer, mobile phone, tablet, console or other device or making any donations through our Platform, you signify that you have read, understand and agree to be bound by this Privacy Policy. We may modify this Privacy Policy at any time. Your continued use of our Platform constitutes your acceptance of this Privacy Policy and any updates. If you do not agree to this Privacy Policy, please do not use our Platform.

Links to Other Web Sites

This Privacy Policy applies exclusively to our Platform and not to any Web sites which may be linked to our Platform. The materials and Web sites referenced and/or linked from our Web site are provided for information purposes only. The linked sites are not under our control, and we do not assume any responsibility or liability for any communication or materials available at such linked sites. Any reference to a commercial or noncommercial product, process, service or company is not an endorsement or recommendation by ALS One, nor a guarantee of the reliability of the information or product.

Collection of Your Personal Information

When using our Platform, you may be asked to provide certain personal information to us in order to use certain products or services available on the Site. These may include: (a) signing up for our newsletter or for any of our events; (b) sending us an email message; and/or (c) submitting your credit card or other payment information when using the Site to make a donation to ALS One. In connection with your use of our Platform, we may ask you to provide personal information, such as your e-mail address, name, home or work address, or telephone number. If you choose to make a donation or sign up for a paid event, membership or newsletter, we may ask for additional information, such as your credit card number and billing address, which is used to create a billing account. The foregoing personally identifiable information is referred to herein as “Personal Information.”

We may also collect demographic information, such as your ZIP code, age, gender, telephone number, image, contact lists, social media information and profile, location (GPS) information, activity and performance information, preferences, interests and favorites. We also may gather personal or non-personal information in the future.

We may also gather certain information automatically that is stored in log files, which does not identify you. For example, we may use Web site analytics tools on our Site to retrieve information from your browser, including the Web site you came from, the search engine and the keywords you used to find our Site, the pages you view within our Site, your browser add-ons, and your browser’s width and height. We may also use technologies, such as cookies and web beacons (described below), to collect information about the pages you view, the links you click and other actions you take on our Site. Additionally, we collect certain standard information that your browser sends to every Web site you visit, such as your IP address, browser type and language, access times and referring Web site addresses.

We may combine information you give us with other information from our sources, transactions and communications. This may include, but is not limited to, information from direct mail, events, products and applications, or other interactions you have with ALS One. We may also combine that information with data that is publicly available and data from third parties.

Use of Your Personal Information

ALS One collects and uses your Personal Information to operate and improve its Platform, its products and services. These uses may include providing you with more effective service; making the Platform or services easier to use; performing research and analysis aimed at improving our products, services, communications and technologies; and displaying content that is customized to your interests and preferences.

We also use your Personal Information to communicate with you. We may send certain service communications such as information on technical service issues, information on our products and services and its functionality and security announcements.

ALS One may also use your Personal Information to inform you of other activities of ALS One and its affiliates and partners.

Sharing Information with Third Parties

We respect the privacy of our financial supporters and, as such, ALS One will not rent, lease, sell or exchange its donor list with other organizations.

ALS One may, however, share data with trusted partners to help perform statistical analysis, send you email or postal mail, host our Site, process transactions (including credit card processing), or provide customer support. All such third parties are prohibited from using your Personal Information except to provide these services to ALS One, and they are required to maintain the confidentiality of your Personal Information. However, for credit card processing, our fraud detection vendors may use aggregate data to help improve their service. This helps them more accurately detect fraudulent uses of credit cards.

ALS One may disclose your personal information, without notice, if required to do so by law or in the good faith that such action is necessary to: (a) conform to the edicts of the law or comply with legal process served on ALS One; (b) protect and defend the rights or property of ALS One; (c) act under exigent circumstances to protect the personal safety of users of the Site, or the public; and/or (d) assist in fraud protection or investigation.

Security of Your Personal Information

ALS One secures your personal information from unauthorized access, use, or disclosure. We use a variety of security technologies and procedures to help protect your Personal Information from unauthorized access, use, or disclosure. However, like other companies, ALS One cannot guarantee the security or confidentiality of the Personal Information you provide to us. As a result, while we strive to protect your Personal Information, you acknowledge that: (a) there are security and privacy limitations inherent in the Internet which are beyond our control; and (b) security, integrity, and privacy of any and all information and data exchanged between you and us through our Platform cannot be guaranteed.

How Long We Keep Your Personal Information

We retain your Personal Information in accordance with our business needs and for legal, regulatory, audit and tax requirements. After this period the Personal Information relating to your account and your use of our Platform will be deleted. Any Personal Information which you have provided to us for receiving information, newsletters and event invitations will be kept until you notify us that you no longer wish to receive this information.

Linking To and From Our Site

If you would like your material to be considered for placement on our Site at a location deemed appropriate by us, please send an email request to, with the following information:

  • URL, if requesting a link

  • Description of the material

  • Goals of the project

  • Ordering information, including all costs

All submissions must be directly related to the field of ALS, and will be reviewed by ALS One against our criteria when time allows. At our discretion, you may be required to submit more detailed information about your organization and/or your submission. ALS One does not accept paid advertising or participate in banner exchange.

If you would like to support our mission by placing a link to our Site on your Web site, we ask that you comply with the following guidelines:

  • Any text-only link must clearly be written as ALS One, Inc.

  • Our logo is unique to the organization, and its use is protected by federal law. Its use is restricted to ALS One unless you have received written permission for us. If you would like to display a logo-based link, please send a written request, with your Web site URL, to

  • Do not incorporate any content from our Site into your Web site through in-lining, framing or creating border environments around our content.

  • Your site must not present false information about our mission, services or products.

  • Do not present the link to our Site in any way suggesting that ALS One has a relationship or affiliation with your Web site or endorses your Web site, products or services.

  • Your Web site should not contain content that could be construed as distasteful, offensive or controversial.

  • If providing your users with informational text summarizing the external Web site to which you are linking, please use the following statement for ALS One:

ALS ONE is a partnership of world-leading ALS researchers, doctors, and care practitioners focused on finding treatments for ALS and novel approaches to improve care for those battling the disease now. ALS ONE has one goal: To identify a breakthrough treatment and ultimate cure for ALS while improving the care now for those battling it.

Use of Cookies

Our Site may use “cookies” to enable or help you to sign in to our services and to help personalize your online experience. A cookie is a small text file that is placed on your hard disk by a Web page server. Cookies contain information that can later be read by a Web server in the domain that issued the cookie to you. Cookies cannot be used to run programs or deliver viruses to your computer.

One of the primary purposes of cookies is to store your preferences and other information on your computer in order to save you time by eliminating the need to repeatedly enter the same information and to display your personalized content and appropriate advertising on your later visits to these sites. Our Site also uses cookies as described in the Collection of your Personal Information section of this Privacy Policy.

You may have the ability to accept or decline cookies. Most Web browsers automatically accept cookies, but you can usually modify your browser setting to decline cookies if you prefer. If you choose to decline cookies, you may not be able to use interactive features of the Site and services that depend on cookies.

If you choose to accept cookies, your browser may give you the ability to later delete cookies that you have accepted. If you choose to delete cookies, any settings and preferences controlled by those cookies will be deleted and may need to be recreated.

Use of Web Beacons

The Site may contain electronic images known as Web beacons – sometimes called single-pixel gifs – that may be used to assist in delivering cookies and allow us to count users who have visited pages on the Site. We may also include Web beacons in e-mail messages in order to determine whether messages have been opened and acted upon.

We may also employ Web beacons from third parties in order to help us compile aggregated statistics regarding the effectiveness of our fundraising campaigns or other operation of our Site.

Finally, we may work with other companies that place links or other content on our Site that include Web beacons on their Web sites in order to allow us to develop statistics on how often clicking on a third-party’s content on our Site results in action on the third-party’s Web site.

Children Under Thirteen

ALS One does not knowingly collect Personal Information from children under the age of thirteen. If you are under the age of thirteen, you must ask your parent or guardian for permission to use this Site.

Email Communications

From time to time, ALS One may contact you via email for the purposes of providing announcements, updates, alerts, confirmations, surveys, and/or general communication, if you have given us your email address for this purpose.

If you would like to stop receiving email from ALS One, you may opt out of such communications by clicking “Unsubscribe from this list” at the bottom of the email.

Changes to This Statement

ALS One reserves the right to change this Privacy Policy from time to time. Your continued use of our Platform after we have made such modifications will constitute your: (a) acknowledgment of the modified Privacy Policy; and (b) agreement to abide and be bound by our modified Privacy Policy.

Contact Information

ALS One welcomes your questions or comments regarding this Privacy Policy. If you believe that ALS One has not adhered to this Privacy Policy, please contact ALS One at:

ALS One, Inc.
8 Industrial Way
Whitman, Massachusetts 02382

Email Address:

© 2019 ALS One, Inc. All rights reserved.