United In ALS research and care.
ALS ONE is an unprecedented partnership of world leaders in Amyotrophic Lateral Sclerosis (ALS) research and care who have joined forces to expedite research towards a cure while helping all individuals who are living with the disease now.
Working together and funding research for a cure tomorrow while providing equipment and resources to individuals living with ALS today.
Working together
By working together, we and our research and care teams at The Healey & AMG Center for ALS at Massachusetts General Hospital, UMass Chan Medical School, ALS Therapy Development Institute and Compassionate Care ALS are making tremendous advancements, making the world of ALS a brighter place for all.
ALS Awareness Month
SUBMIT YOUR TRIBUTE TO HONOR YOUR ALS HERO FOR ALS AWARENESS MONTH. Each day on our social channels, as we do each May, we will be featuring some of the incredibly inspiring individuals who are currently living with ALS or who have lost their battle to the disease. If you would like to submit a tribute for a loved one – or you are living with ALS and would like to be featured – it would be our utmost honor. Simply complete the form via the link below and upload 1-4 photos and we’ll post during May. These tributes are submission-based and it’s our honor to include anyone and everyone who would like to be included. At ALS ONE, every month is ALS Awareness Month and we’re not done until we’re ALS DONE. Click HERE to submit yours.
A new resource!
Join us on 6/11/24 at 4pm EST, as we, along with NEALS, host the second of two webinars focused on ALS genetic testing and counseling. June 11th’s webinar spotlights the publication, “Evidence-based consensus guidelines for ALS genetic testing and counseling”, with two of its authors, Dr. Matthew Harms, MD, Associate Professor of Neurology at Columbia, and Jennifer Roggenbuck, MS, CGC, Genetic Counselor and Assoc Prof of Neurology at Ohio State Wexner Med Ctr. Panelists include Dr. Christina Fournier, MD, MSc, Associate Professor of Neurology at Emory Univ. & NEALS NICE Committee member; Lori Andre, who is a NEALS Research Ambassador & Patient Advisory Council Member; Paula Trefiak, a NEALS Research Ambassador and International Patient Fellow, along with our Executive Director, Jennifer DiMartino. Registration for the webinar is free but required, and we hope you’ll join us by clicking
https://us06web.zoom.us/webinar/register/WN_rlbf-dAqTqGyx0OwcBGOjQ .
We also invite you to read the publication ahead of time if you have yet to, by clicking: https://onlinelibrary.wiley.com/doi/10.1002/acn3.51895.
Be sure to visit our Research Tab to view our inaugural review HERE.
Events
