Align organizational strategy with meaningful community impact, bridging strategic planning, program oversight, and stakeholder engagement, ensuring that the organization’s work supports acceleration of ALS research, enhances clinical care, and empowers the ALS community. Also responsible for driving the organization’s multi-year strategic roadmap, strengthening community partnerships, and fostering inclusive programs that unite patients, caregivers, clinicians, researchers, and donors in shared purpose.

BA Degree – Human Resources and Organizational Development, Ottawa University Master’s Certification – Clinical Research Administration, UC Berkeley Executive Certification (Currently Pursuing) – Clinical Development Strategies: Beyond Clinical Trials – Harvard Medical School Other Certifications: Project Management Information Systems Management Technology Quality Assurance

Since losing her husband to ALS in 2016, Allison has committed her time and energy to helping others on the journey, and to doing whatever is possible to enable cures for ALS to be found. She has served as the Strategic Advisor for The Sean M Healey and AMG Center at MGH and the Northeast ALS Consortium (NEALS), the Patient Liaison to the Executive Team of NEALS, the Co-Chair of the NEALS Patient Education and Advocacy Committee (PEACe), Co-Chair of the NEALS Information and Community Education Workgroup (NICE), a member of The Patient Engagement Team for the HEALEY ALS Platform Trial , a member of the Knowledge Base Committee for The International Alliance of ALS/MND Associations, a Consumer Reviewer for the Department of Defense Clinically Directed Medical Research Program (CDMRP) and a member of the AMP-ALS NIH/NINDS Strategic Workgroup. Allison is currently the Chair of the Stakeholder Advisory Board for the ALS Natural History Consortium, is a member of the Patient Advisory Committee, and EAP Advisory Committee for the HEALEY ALS Platform Trial, is an appointed member of the Patient-Centered Outcomes Research Institute (PCORI) Rare Diseases Advisory Board, and an advisor on the Global Joint Task Force for Clinical Trial Competency Patient Partner Project (JTF-P3).